{"id":28939,"date":"2023-08-09T08:23:00","date_gmt":"2023-08-09T11:23:00","guid":{"rendered":"https:\/\/mindthegraph.com\/blog\/cse-style-copy\/"},"modified":"2023-08-10T12:52:17","modified_gmt":"2023-08-10T15:52:17","slug":"what-is-amyotrophic-lateral-sclerosis","status":"publish","type":"post","link":"https:\/\/mindthegraph.com\/blog\/zh\/%e4%bb%80%e4%b9%88%e6%98%af%e8%82%8c%e8%90%8e%e7%bc%a9%e6%80%a7%e8%84%8a%e9%ab%93%e4%be%a7%e7%b4%a2%e7%a1%ac%e5%8c%96%e7%97%87%ef%bc%9f\/","title":{"rendered":"\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\u53ca\u5176\u5f71\u54cd\uff1f"},"content":{"rendered":"<p>\u5728\u8ba8\u8bba\u795e\u7ecf\u7cfb\u7edf\u75be\u75c5\u65f6\uff0c\u5f88\u5c11\u6709\u75be\u75c5\u80fd\u50cf\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\uff08\u901a\u5e38\u79f0\u4e3a ALS\uff09\u90a3\u6837\u65e2\u590d\u6742\u53c8\u5177\u6709\u7834\u574f\u6027\u3002\u8fd9\u79cd\u795e\u79d8\u7684\u75be\u75c5\u901a\u5e38\u4e0e\u5362\u4f3d\u96f7\u6c0f\u75c5\u9f50\u540d\uff0c\u4ee5\u7eaa\u5ff5\u8fd9\u4f4d\u804c\u4e1a\u751f\u6daf\u4e0d\u5e78\u53d7\u5230\u8be5\u75c5\u5f71\u54cd\u7684\u8457\u540d\u68d2\u7403\u8fd0\u52a8\u5458\uff0c\u5b83\u662f\u4e00\u4e2a\u9519\u7efc\u590d\u6742\u7684\u8c1c\uff0c\u4e00\u76f4\u5438\u5f15\u7740\u533b\u5b66\u7814\u7a76\u4eba\u5458\u3001\u4e34\u5e8a\u533b\u751f\u548c\u5e7f\u5927\u516c\u4f17\u7684\u6ce8\u610f\u529b\u3002&nbsp;<\/p>\n\n\n\n<p>\u867d\u7136\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\u53ef\u80fd\u4e0d\u50cf\u67d0\u4e9b\u5176\u4ed6\u795e\u7ecf\u7cfb\u7edf\u75be\u75c5\u90a3\u6837\u5f97\u5230\u5e7f\u6cdb\u8ba4\u53ef\uff0c\u4f46\u5b83\u5bf9\u76f4\u63a5\u60a3\u8005\u53ca\u5176\u4eb2\u4eba\u7684\u5f71\u54cd\u5374\u662f\u6df1\u8fdc\u7684\uff0c\u5e38\u5e38\u4f34\u968f\u7740\u4ee4\u4eba\u75db\u5fc3\u7684\u60c5\u7eea\u3002\u672c\u6587\u9898\u4e3a \"\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\u53ca\u5176\u5f71\u54cd\uff1f&nbsp;<\/p>\n\n\n\n<p>\u6444\u5f71\u5e08\u3001\u6851\u5fb7\u62c9-\u5e03\u6d1b\u514b\uff08Sandra Bullock\uff09\u7684\u957f\u671f\u4f34\u4fa3\u5e03\u83b1\u6069-\u5170\u5fb7\u5c14\uff08Bryan Randall\uff09\u6700\u8fd1\u4e0d\u5e78\u53bb\u4e16\uff0c\u8fd9\u518d\u6b21\u51f8\u663e\u4e86\u6e10\u51bb\u4eba\u75c7\u5728\u516c\u4f17\u773c\u4e2d\u7684\u91cd\u8981\u6027\u300257 \u5c81\u7684\u5e03\u83b1\u6069\u7684\u53bb\u4e16\u51f8\u663e\u4e86\u8fd9\u79cd\u75be\u75c5\u7684\u65e0\u60c5\u3002\u4ee4\u4eba\u9057\u61be\u7684\u662f\uff0c\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u7f3a\u4e4f\u6cbb\u6108\u65b9\u6cd5\uff0c\u786e\u8bca\u540e\u60a3\u8005\u7684\u5e73\u5747\u9884\u671f\u5bff\u547d\u901a\u5e38\u4e3a 2 \u5230 5 \u5e74\u3002<\/p>\n\n\n\n<h2 id=\"h-what-is-amyotrophic-lateral-sclerosis\">\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\uff1f<\/h2>\n\n\n\n<p>\u533b\u5b66\u79d1\u5b66\u7ecf\u5e38\u63ed\u5f00\u4eba\u7c7b\u5065\u5eb7\u9886\u57df\u590d\u6742\u7684\u8c1c\u56e2\u3002\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\uff08ALS\uff09\u5c31\u662f\u5176\u4e2d\u4e4b\u4e00\u3002\u4f60\u53ef\u80fd\u77e5\u9053\u5b83\u53eb\u5362\u4f3d\u96f7\u6c0f\u75c5\u3002\u8fd9\u79cd\u75be\u75c5\u4f1a\u5f71\u54cd\u5927\u8111\u548c\u810a\u9ad3\u7684\u8fd0\u52a8\u795e\u7ecf\u5143\uff0c\u8fd9\u4e9b\u795e\u7ecf\u5143\u63a7\u5236\u7740\u4eba\u4f53\u7684\u808c\u8089\u3002\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\u60a3\u8005\u7684\u8fd9\u4e9b\u795e\u7ecf\u5143\u4f1a\u53d1\u751f\u574f\u6b7b\uff0c\u5bfc\u81f4\u808c\u8089\u96be\u4ee5\u8fd0\u52a8\u3002<\/p>\n\n\n\n<h3 id=\"h-definition-of-als\">ALS \u7684\u5b9a\u4e49<\/h3>\n\n\n\n<p>\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\uff08ALS\uff09\u662f\u4e00\u79cd\u5f71\u54cd\u4eba\u4f53\u808c\u8089\u5de5\u4f5c\u7684\u75be\u75c5\u3002\u968f\u7740\u65f6\u95f4\u7684\u63a8\u79fb\uff0c\u4eba\u7684\u808c\u8089\u4f1a\u53d8\u5f97\u8d8a\u6765\u8d8a\u5f31\uff0c\u4ece\u800c\u5bfc\u81f4\u884c\u52a8\u548c\u5b8c\u6210\u65e5\u5e38\u4efb\u52a1\u65f6\u51fa\u73b0\u95ee\u9898\u3002<\/p>\n\n\n\n<h3 id=\"h-brief-history-and-background\">\u7b80\u53f2\u4e0e\u80cc\u666f<\/h3>\n\n\n\n<p>\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\uff08ALS\uff09\u7684\u5386\u53f2\u662f\u4e00\u4e2a\u8de8\u8d8a\u4e00\u4e2a\u591a\u4e16\u7eaa\u7684\u53d1\u73b0\u6545\u4e8b\u3002\u5b83\u59cb\u4e8e 1869 \u5e74\uff0c\u5f53\u65f6\u6cd5\u56fd\u795e\u7ecf\u5b66\u5bb6\u8ba9-\u9a6c\u4e01-\u6c99\u5c14\u79d1\uff08Jean-Martin Charcot\uff09\u9996\u6b21\u53d1\u73b0\u5e76\u63cf\u8ff0\u4e86\u8fd9\u79cd\u75be\u75c5\u3002\u7136\u800c\uff0c1939 \u5e74\uff0c\u5f53\u4f20\u5947\u68d2\u7403\u8fd0\u52a8\u5458\u5362-\u683c\u91cc\u514b\u88ab\u8bca\u65ad\u51fa\u60a3\u6709 ALS \u65f6\uff0cALS \u5f97\u5230\u4e86\u66f4\u5e7f\u6cdb\u7684\u8ba4\u53ef\uff0c\u5e76\u56e0\u6b64\u88ab\u4fd7\u79f0\u4e3a \"\u5362-\u683c\u91cc\u514b\u75c5\"\u3002<\/p>\n\n\n\n<p>20 \u4e16\u7eaa 60 \u5e74\u4ee3\u548c 70 \u5e74\u4ee3\u7684\u7814\u7a76\u8fdb\u5c55\u63ed\u793a\u4e86\u8fd9\u79cd\u75be\u75c5\u7684\u6838\u5fc3\uff0c\u63ed\u793a\u4e86\u8fd0\u52a8\u795e\u7ecf\u5143\u7684\u8fdb\u884c\u6027\u53d8\u6027\u662f\u5176\u57fa\u672c\u673a\u5236\u300220 \u4e16\u7eaa 90 \u5e74\u4ee3\uff0c\u57fa\u56e0\u65b9\u9762\u7684\u7a81\u7834\u53d1\u73b0\u4e86\u6e10\u51bb\u4eba\u75c7\u4e0e SOD1 \u548c TDP-43 \u7b49\u57fa\u56e0\u4e4b\u95f4\u7684\u8054\u7cfb\uff0c\u52a0\u6df1\u4e86\u6211\u4eec\u5bf9\u5176\u57fa\u56e0\u6210\u5206\u7684\u4e86\u89e3\u3002<\/p>\n\n\n\n<p>21 \u4e16\u7eaa\u5177\u6709\u91cd\u8981\u7684\u91cc\u7a0b\u7891\u610f\u4e49\uff0c\u5176\u4e2d\u5305\u62ec\u75c5\u6bd2\u6027\u7684 \"\u51b0\u6876\u6311\u6218\"\uff08Ice Bucket Challenge\uff09\uff0c\u5b83\u63d0\u9ad8\u4e86\u4eba\u4eec\u5bf9 ALS \u7684\u8ba4\u8bc6\uff0c\u5e76\u4e3a ALS \u7814\u7a76\u63d0\u4f9b\u4e86\u8d44\u6e90\u30022016 \u5e74\uff0c\u7f8e\u56fd\u98df\u54c1\u548c\u836f\u7269\u7ba1\u7406\u5c40\u6279\u51c6\u4e86\u9996\u4e2a ALS \u4e13\u7528\u836f\u7269\u4f9d\u8fbe\u62c9\u5949\uff08Radicava\uff09\uff0c\u4e3a\u51cf\u7f13\u75be\u75c5\u8fdb\u5c55\u63d0\u4f9b\u4e86\u4e00\u79cd\u65b0\u65b9\u6cd5\u3002<\/p>\n\n\n\n<p>\u8fdb\u5165 2020 \u5e74\uff0c\u6211\u4eec\u5c06\u7ee7\u7eed\u4e0d\u61c8\u5730\u5f00\u5c55\u7814\u7a76\uff0c\u63a2\u7d22\u6cbb\u7597\u7684\u53ef\u80fd\u6027\u3001\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u9519\u7efc\u590d\u6742\u7684\u57fa\u56e0\u4ee5\u53ca\u6f5c\u5728\u7684\u8bf1\u56e0\u3002\u8fd9\u4e00\u5386\u7a0b\u5f70\u663e\u4e86\u6211\u4eec\u81f4\u529b\u4e8e\u63ed\u793a ALS \u7684\u590d\u6742\u6027\u5e76\u51cf\u8f7b\u5176\u5bf9\u60a3\u8005\u7684\u5f71\u54cd\u7684\u51b3\u5fc3\u3002<\/p>\n\n\n\n<h3 id=\"h-importance-of-understanding-als\">\u4e86\u89e3 ALS \u7684\u91cd\u8981\u6027<\/h3>\n\n\n\n<p>\u4e86\u89e3 ALS \u5bf9\u4e0d\u540c\u7684\u4eba\u90fd\u6709\u91cd\u8981\u4f5c\u7528\uff0c\u4e0d\u4ec5\u662f\u533b\u5b66\u4e13\u5bb6\uff0c\u8fd8\u5305\u62ec\u6574\u4e2a\u793e\u4f1a\u3002\u4e86\u89e3 ALS \u7684\u91cd\u8981\u6027\u4e3b\u8981\u6e90\u4e8e\u4ee5\u4e0b\u51e0\u4e2a\u539f\u56e0\uff1a<\/p>\n\n\n\n<p>\u9996\u5148\uff0c\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\uff08ALS\uff09\u4e0d\u5206\u4eba\u7fa4\uff0c\u56e0\u6b64\u5e7f\u6cdb\u4e86\u89e3\u8be5\u75c5\u81f3\u5173\u91cd\u8981\u3002\u63d0\u9ad8\u5bf9\u8fd9\u79cd\u75be\u75c5\u7684\u8ba4\u8bc6\uff0c\u53ef\u4ee5\u8ba9\u533b\u7597\u4e13\u4e1a\u4eba\u5458\u5728\u75be\u75c5\u7684\u65e9\u671f\u9636\u6bb5\u5c31\u80fd\u53d1\u73b0\u5b83\uff0c\u4ece\u800c\u4e3a\u60a3\u8005\u63d0\u4f9b\u53ca\u65f6\u7684\u5e72\u9884\u548c\u62a4\u7406\u3002<\/p>\n\n\n\n<p>\u5176\u6b21\uff0c\u52a0\u6df1\u5bf9 ALS \u7684\u4e86\u89e3\u53ef\u4ee5\u4e3a\u8fce\u63a5\u5176\u6311\u6218\u7684\u5bb6\u5ead\u5e26\u6765\u5e0c\u671b\u3002\u6e05\u695a\u5730\u4e86\u89e3\u75be\u75c5\u7684\u8fdb\u5c55\u548c\u73b0\u6709\u7684\u6cbb\u7597\u65b9\u6cd5\uff0c\u53ef\u4ee5\u8ba9\u60a3\u8005\u5bb6\u5ead\u672a\u96e8\u7ef8\u7f2a\uff0c\u8c03\u6574\u751f\u6d3b\uff0c\u505a\u51fa\u660e\u667a\u7684\u9009\u62e9\u3002<\/p>\n\n\n\n<p>\u6b64\u5916\uff0c\u7814\u7a76\u5de5\u4f5c\u4e5f\u56e0\u4e86\u89e3\u800c\u83b7\u5f97\u52a8\u529b\u3002\u5bf9 ALS \u9519\u7efc\u590d\u6742\u7684\u672c\u8d28\u6709\u4e86\u6df1\u523b\u7684\u4e86\u89e3\uff0c\u5c31\u80fd\u52a0\u5feb\u5bfb\u627e\u6f5c\u5728\u7597\u6cd5\u548c\u5e72\u9884\u63aa\u65bd\u7684\u6b65\u4f10\u3002\u6709\u4e86\u66f4\u6df1\u5165\u7684\u4e86\u89e3\uff0c\u5c31\u80fd\u66f4\u6709\u6548\u5730\u5c06\u8d44\u6e90\u5bfc\u5411\u6709\u6548\u7684\u89e3\u51b3\u65b9\u6848\u3002<\/p>\n\n\n\n<p>\u5f52\u6839\u7ed3\u5e95\uff0c\u4e86\u89e3 ALS \u9700\u8981\u4e00\u4e2a\u96c6\u4f53\u9635\u7ebf\u3002\u5bb6\u4eba\u3001\u670b\u53cb\u3001\u62a4\u7406\u4eba\u5458\u3001\u7814\u7a76\u4eba\u5458\u548c\u66f4\u5e7f\u6cdb\u7684\u793e\u533a\u56e2\u7ed3\u8d77\u6765\uff0c\u5171\u540c\u5e94\u5bf9\u8fd9\u4e00\u6311\u6218\u3002\u901a\u8fc7\u5bf9 ALS \u7684\u5168\u9762\u4e86\u89e3\uff0c\u4e00\u573a\u5f3a\u5927\u7684\u6297 ALS \u8fd0\u52a8\u5c31\u4f1a\u5f62\u6210\uff0c\u672a\u6765 ALS \u5c06\u6210\u4e3a\u575a\u97e7\u3001\u56e2\u7ed3\u548c\u8fdb\u6b65\u7684\u4ee3\u540d\u8bcd\u3002<\/p>\n\n\n\n<h2 id=\"h-understanding-the-disease\">\u4e86\u89e3\u75be\u75c5<\/h2>\n\n\n\n<p>\u4f17\u6240\u5468\u77e5\uff0c\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\uff08ALS\uff09\u662f\u4e00\u79cd\u590d\u6742\u7684\u75be\u75c5\u3002\u4ee5\u4e0b\u662f\u4e00\u4e9b\u91cd\u8981\u7684\u7ec6\u8282\uff1a<\/p>\n\n\n\n<h3 id=\"h-symptoms-and-early-signs\">\u75c7\u72b6\u548c\u65e9\u671f\u5f81\u5146<\/h3>\n\n\n\n<p>\u65e9\u671f\u53d1\u73b0\u6e10\u51bb\u4eba\u75c7\u6709\u8d56\u4e8e\u8bc6\u522b\u5176\u7279\u5f81\u6027\u75c7\u72b6\u3002\u6700\u521d\u7684\u75c7\u72b6\u901a\u5e38\u662f\u808c\u8089\u65e0\u529b\uff0c\u5c24\u5176\u662f\u56db\u80a2\u3002\u5176\u4ed6\u6f5c\u5728\u75c7\u72b6\u5305\u62ec\u8a00\u8bed\u6539\u53d8\u3001\u808c\u8089\u62bd\u6410\u548c\u75b2\u52b3\u611f\u3002\u00a0<\/p>\n\n\n\n<div style=\"height:21px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" loading=\"lazy\" width=\"1024\" height=\"558\" src=\"https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog3-1024x558.jpg\" alt=\"\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\uff1f\" class=\"wp-image-29025\" srcset=\"https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog3-1024x558.jpg 1024w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog3-300x163.jpg 300w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog3-768x419.jpg 768w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog3-18x10.jpg 18w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog3-100x54.jpg 100w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog3-150x82.jpg 150w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog3.jpg 1123w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><figcaption class=\"wp-element-caption\"><em>\u4f7f\u7528\u65b9\u6cd5 <a href=\"https:\/\/mindthegraph.com\/\" target=\"_blank\" rel=\"noreferrer noopener\">Mind the Graph<\/a><\/em><\/figcaption><\/figure>\n\n\n\n<div style=\"height:21px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 id=\"h-causes-and-risk-factors\">\u539f\u56e0\u548c\u98ce\u9669\u56e0\u7d20<\/h3>\n\n\n\n<p>\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u7684\u786e\u5207\u75c5\u56e0\u5c1a\u4e0d\u5b8c\u5168\u6e05\u695a\uff0c\u4f46\u76f8\u4fe1\u662f\u9057\u4f20\u548c\u73af\u5883\u56e0\u7d20\u5171\u540c\u4f5c\u7528\u7684\u7ed3\u679c\u3002\u4ee5\u4e0b\u662f\u4e00\u4e9b\u4e0e ALS \u76f8\u5173\u7684\u5df2\u77e5\u75c5\u56e0\u548c\u98ce\u9669\u56e0\u7d20\uff1a<\/p>\n\n\n\n<ul>\n<li><strong>\u9057\u4f20\u56e0\u7d20\uff1a <\/strong>\u4e00\u5c0f\u90e8\u5206\uff08\u7ea6 5-10%\uff09\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u75c5\u4f8b\u662f\u9057\u4f20\u6027\u7684\uff0c\u8fd9\u610f\u5473\u7740\u5b83\u4eec\u662f\u7531\u7279\u5b9a\u57fa\u56e0\u7a81\u53d8\u5f15\u8d77\u7684\u3002\u4e0e\u5bb6\u65cf\u6027 ALS \u76f8\u5173\u7684\u6700\u8457\u540d\u57fa\u56e0\u662f C9orf72 \u57fa\u56e0\u7a81\u53d8\u3002SOD1\u3001TARDBP \u548c FUS \u7b49\u5176\u4ed6\u57fa\u56e0\u7684\u7a81\u53d8\u4e5f\u4e0e ALS \u6709\u5173\u3002\u8fd9\u4e9b\u57fa\u56e0\u7a81\u53d8\u4f1a\u5bfc\u81f4\u5f02\u5e38\u86cb\u767d\u8d28\u5728\u795e\u7ecf\u5143\u4e2d\u79ef\u7d2f\uff0c\u9020\u6210\u635f\u4f24\u548c\u7ec6\u80de\u6b7b\u4ea1\u3002<\/li>\n\n\n\n<li><strong>\u73af\u5883\u56e0\u7d20\uff1a <\/strong>\u867d\u7136\u9057\u4f20\u56e0\u7d20\u5728\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u7684\u5bb6\u65cf\u75c5\u4f8b\u4e2d\u8d77\u7740\u91cd\u8981\u4f5c\u7528\uff0c\u4f46\u73af\u5883\u56e0\u7d20\u4e5f\u88ab\u8ba4\u4e3a\u662f\u5bfc\u81f4\u8be5\u75c5\u53d1\u751f\u7684\u539f\u56e0\u4e4b\u4e00\u3002\u63a5\u89e6\u67d0\u4e9b\u6bd2\u7d20\u548c\u5316\u5b66\u7269\u8d28\uff0c\u5982\u91cd\u91d1\u5c5e\u3001\u6740\u866b\u5242\u548c\u5de5\u4e1a\u6c61\u67d3\u7269\uff0c\u88ab\u8ba4\u4e3a\u662f\u6f5c\u5728\u7684\u98ce\u9669\u56e0\u7d20\u3002<\/li>\n\n\n\n<li><strong>\u5e74\u9f84\uff1a<\/strong> \u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u901a\u5e38\u5728 40 \u5c81\u81f3 70 \u5c81\u7684\u6210\u5e74\u4eba\u4e2d\u53d1\u75c5\uff0c\u5e73\u5747\u53d1\u75c5\u5e74\u9f84\u7ea6\u4e3a 55-60 \u5c81\u3002\u4e0d\u8fc7\uff0c\u4efb\u4f55\u5e74\u9f84\u90fd\u6709\u53ef\u80fd\u53d1\u75c5\u3002<\/li>\n\n\n\n<li><strong>\u6027\u522b<\/strong> \u6e10\u51bb\u4eba\u75c7\u5728\u7537\u6027\u4e2d\u7684\u53d1\u75c5\u7387\u7565\u9ad8\u4e8e\u5973\u6027\u3002\u9020\u6210\u8fd9\u79cd\u6027\u522b\u5dee\u5f02\u7684\u539f\u56e0\u5c1a\u4e0d\u5b8c\u5168\u6e05\u695a\u3002<\/li>\n\n\n\n<li><strong>\u79cd\u65cf\u4e0e\u6c11\u65cf\uff1a <\/strong>\u6e10\u51bb\u4eba\u75c7\u5728\u6240\u6709\u79cd\u65cf\u548c\u65cf\u88d4\u7fa4\u4f53\u4e2d\u90fd\u4f1a\u53d1\u751f\uff0c\u4f46\u4e0e\u5176\u4ed6\u79cd\u65cf\u7fa4\u4f53\u76f8\u6bd4\uff0c\u767d\u79cd\u4eba\u4f3c\u4e4e\u66f4\u5e38\u89c1\u3002<\/li>\n\n\n\n<li><strong>\u5438\u70df\uff1a <\/strong>\u6709\u8bc1\u636e\u8868\u660e\uff0c\u5438\u70df\u53ef\u80fd\u4f1a\u589e\u52a0 ALS \u7684\u60a3\u75c5\u98ce\u9669\u3002\u5438\u70df\u4e0e\u6c27\u5316\u5e94\u6fc0\u548c\u708e\u75c7\u6709\u5173\uff0c\u800c\u6c27\u5316\u5e94\u6fc0\u548c\u708e\u75c7\u88ab\u8ba4\u4e3a\u5728\u75be\u75c5\u7684\u53d1\u5c55\u8fc7\u7a0b\u4e2d\u8d77\u7740\u4e00\u5b9a\u7684\u4f5c\u7528\u3002<\/li>\n\n\n\n<li><strong>\u4f53\u80b2\u6d3b\u52a8\uff1a<\/strong> \u6709\u8bc1\u636e\u8868\u660e\uff0c\u6709\u5927\u91cf\u4f53\u80b2\u953b\u70bc\u53f2\u7684\u4eba\u7f79\u60a3\u6e10\u51bb\u4eba\u75c7\u7684\u98ce\u9669\u53ef\u80fd\u4f1a\u7565\u6709\u589e\u52a0\u3002\u7136\u800c\uff0c\u4f53\u80b2\u953b\u70bc\u4e0e ALS \u98ce\u9669\u4e4b\u95f4\u7684\u5173\u7cfb\u8fd8\u4e0d\u5b8c\u5168\u6e05\u695a\uff0c\u9700\u8981\u8fdb\u4e00\u6b65\u7814\u7a76\u3002<\/li>\n\n\n\n<li><strong>\u5934\u90e8\u521b\u4f24 <\/strong>\u6709\u89c2\u70b9\u8ba4\u4e3a\uff0c\u5934\u90e8\u5916\u4f24\u53f2\u53ef\u80fd\u4e0e ALS \u98ce\u9669\u7565\u6709\u589e\u52a0\u6709\u5173\u3002\u4e0d\u8fc7\uff0c\u5934\u90e8\u5916\u4f24\u4e0e\u6e10\u51bb\u75c7\u4e4b\u95f4\u7684\u8054\u7cfb\u4ecd\u5728\u7814\u7a76\u4e4b\u4e2d\u3002<\/li>\n<\/ul>\n\n\n\n<h3 id=\"h-how-als-affects-the-body\">\u6e10\u51bb\u4eba\u75c7\u5982\u4f55\u5f71\u54cd\u8eab\u4f53<\/h3>\n\n\n\n<ul>\n<li><strong>\u8fd0\u52a8\u795e\u7ecf\u5143\u53d8\u6027 <\/strong>\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u9488\u5bf9\u8fd0\u52a8\u795e\u7ecf\u5143\uff0c\u5bfc\u81f4\u808c\u8089\u65e0\u529b\u548c\u5931\u53bb\u63a7\u5236\u3002<\/li>\n\n\n\n<li><strong>\u808c\u8089\u65e0\u529b <\/strong>\u9010\u6e10\u9000\u5316\u4f1a\u5bfc\u81f4\u884c\u52a8\u548c\u65e5\u5e38\u5de5\u4f5c\u56f0\u96be\u3002<\/li>\n\n\n\n<li><strong>\u8a00\u8bed\u548c\u541e\u54bd\u95ee\u9898 <\/strong>\u8bf4\u8bdd\u548c\u541e\u54bd\u7684\u808c\u8089\u4f1a\u53d7\u5230\u5f71\u54cd\uff0c\u5bfc\u81f4\u53e3\u9f7f\u4e0d\u6e05\u548c\u8fdb\u98df\u56f0\u96be\u3002<\/li>\n\n\n\n<li><strong>\u547c\u5438\u95ee\u9898 <\/strong>\u547c\u5438\u808c\u51cf\u5f31\uff0c\u5bfc\u81f4\u547c\u5438\u56f0\u96be\u3002<\/li>\n\n\n\n<li><strong>\u8fdb\u884c\u6027\u762b\u75ea <\/strong>\u968f\u7740\u65f6\u95f4\u7684\u63a8\u79fb\uff0c\u65e5\u76ca\u4e25\u91cd\u7684\u762b\u75ea\u4f1a\u5f71\u54cd\u884c\u52a8\u80fd\u529b\u548c\u72ec\u7acb\u6027\u3002<\/li>\n\n\n\n<li><strong>\u8ba4\u77e5\u53d8\u5316\uff1a <\/strong>\u6709\u4e9b\u4eba\u7684\u8bb0\u5fc6\u548c\u51b3\u7b56\u80fd\u529b\u4f1a\u53d1\u751f\u6539\u53d8\uff0c\u5c24\u5176\u662f\u60a3\u6709\u989d\u989e\u53f6\u75f4\u5446\u75c7\u7684 ALS \u60a3\u8005\u3002<\/li>\n\n\n\n<li><strong>\u611f\u5b98\u529f\u80fd\u5b8c\u597d\u65e0\u635f <\/strong>\u89e6\u89c9\u548c\u89c6\u89c9\u7b49\u611f\u89c9\u901a\u5e38\u4e0d\u53d7\u5f71\u54cd\u3002<\/li>\n\n\n\n<li><strong>\u5371\u53ca\u751f\u547d\u7684\u5e76\u53d1\u75c7 <\/strong>\u665a\u671f\u547c\u5438\u8870\u7aed\u53ef\u5371\u53ca\u751f\u547d\u3002<\/li>\n<\/ul>\n\n\n\n<div style=\"height:21px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" loading=\"lazy\" width=\"1024\" height=\"558\" src=\"https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog2-1024x558.jpg\" alt=\"\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\uff1f\" class=\"wp-image-29027\" srcset=\"https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog2-1024x558.jpg 1024w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog2-300x163.jpg 300w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog2-768x419.jpg 768w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog2-18x10.jpg 18w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog2-100x54.jpg 100w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog2-150x82.jpg 150w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog2.jpg 1123w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><figcaption class=\"wp-element-caption\"><em>\u4f7f\u7528\u65b9\u6cd5 <a href=\"https:\/\/mindthegraph.com\/\" target=\"_blank\" rel=\"noreferrer noopener\">Mind the Graph<\/a><\/em><\/figcaption><\/figure>\n\n\n\n<div style=\"height:21px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 id=\"h-diagnosis-and-testing\">\u8bca\u65ad\u548c\u6d4b\u8bd5<\/h2>\n\n\n\n<p>ALS \u8bca\u65ad\u662f\u4e00\u4e2a\u7efc\u5408\u8fc7\u7a0b\uff0c\u5305\u62ec\u4e34\u5e8a\u8bc4\u4f30\u3001\u75c5\u53f2\u8bc4\u4f30\u3001\u795e\u7ecf\u7cfb\u7edf\u68c0\u67e5\u548c\u6392\u9664\u5176\u4ed6\u75be\u75c5\u3002\u5b83\u4f9d\u8d56\u4e8e\u4e00\u7cfb\u5217\u68c0\u67e5\uff0c\u5305\u62ec\u808c\u7535\u56fe\uff08EMG\uff09\u3001\u795e\u7ecf\u4f20\u5bfc\u7814\u7a76\uff08NCS\uff09\u548c\u6210\u50cf\uff0c\u8fd9\u4e9b\u68c0\u67e5\u5171\u540c\u8bc4\u4f30\u795e\u7ecf\u548c\u808c\u8089\u529f\u80fd\u3002\u503c\u5f97\u6ce8\u610f\u7684\u662f\uff0c\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u7f3a\u4e4f\u552f\u4e00\u660e\u786e\u7684\u68c0\u67e5\u65b9\u6cd5\uff1b\u76f8\u53cd\uff0c\u8bca\u65ad\u53d6\u51b3\u4e8e\u4e34\u5e8a\u89c2\u5bdf\u548c\u5404\u79cd\u68c0\u67e5\u7ed3\u679c\u7684\u7efc\u5408\u3002<\/p>\n\n\n\n<h3 id=\"h-diagnostic-procedures\">\u8bca\u65ad\u7a0b\u5e8f<\/h3>\n\n\n\n<ul>\n<li>\u56de\u987e\u75c5\u53f2\uff0c\u4e86\u89e3\u75c7\u72b6\u53ca\u5176\u53d1\u5c55\u3002<\/li>\n\n\n\n<li>\u8fdb\u884c\u795e\u7ecf\u8bc4\u4f30\uff0c\u4ee5\u8bc4\u4f30\u808c\u8089\u529b\u91cf\u3001\u53cd\u5c04\u548c\u534f\u8c03\u6027\u3002<\/li>\n\n\n\n<li>\u808c\u7535\u56fe\uff08EMG\uff09\u53ef\u6d4b\u91cf\u808c\u8089\u6d3b\u52a8\u5e76\u68c0\u6d4b\u795e\u7ecf\u95ee\u9898\u3002<\/li>\n\n\n\n<li>\u795e\u7ecf\u4f20\u5bfc\u7814\u7a76\uff08NCS\uff09\u53ef\u8bc4\u4f30\u795e\u7ecf\u529f\u80fd\u548c\u53cd\u5e94\u3002<\/li>\n<\/ul>\n\n\n\n<h3 id=\"h-challenges-in-diagnosis\">\u8bca\u65ad\u65b9\u9762\u7684\u6311\u6218<\/h3>\n\n\n\n<ul>\n<li>ALS \u7684\u75c7\u72b6\u4e0e\u5176\u4ed6\u75be\u75c5\u91cd\u53e0\uff0c\u5bfc\u81f4\u8bef\u8bca\u6216\u5ef6\u8bef\u8bca\u65ad\u3002<\/li>\n\n\n\n<li>\u7f3a\u4e4f\u7279\u5b9a\u7684\u751f\u7269\u6807\u5fd7\u7269\u4f1a\u59a8\u788d\u65e9\u671f\u51c6\u786e\u8bca\u65ad\u3002<\/li>\n\n\n\n<li>\u75c5\u60c5\u7684\u53d1\u5c55\u548c\u75c7\u72b6\u7684\u53d8\u5316\u7ed9\u8bca\u65ad\u5e26\u6765\u4e86\u6311\u6218\u3002<\/li>\n<\/ul>\n\n\n\n<h3 id=\"h-differentiating-als-from-other-diseases\">ALS \u4e0e\u5176\u4ed6\u75be\u75c5\u7684\u533a\u522b<\/h3>\n\n\n\n<p>\u4e0e\u4e3b\u8981\u5f71\u54cd\u4e2d\u67a2\u795e\u7ecf\u7cfb\u7edf\u9ad3\u9798\u7684\u591a\u53d1\u6027\u786c\u5316\u75c7\uff08MS\uff09\u4e0d\u540c\uff0c\u6e10\u51bb\u4eba\u75c7\u7684\u76ee\u6807\u662f\u8d1f\u8d23\u81ea\u4e3b\u808c\u8089\u63a7\u5236\u7684\u8fd0\u52a8\u795e\u7ecf\u5143\u3002&nbsp;<\/p>\n\n\n\n<p>\u867d\u7136\u539f\u53d1\u6027\u4fa7\u7d22\u786c\u5316\u75c7\uff08PLS\uff09\u4e0e ALS \u6709\u67d0\u4e9b\u76f8\u540c\u4e4b\u5904\uff0c\u4f46\u5b83\u4e3b\u8981\u7d2f\u53ca\u4e0a\u8fd0\u52a8\u795e\u7ecf\u5143\uff0c\u6709\u522b\u4e8e ALS \u7684\u4e0a\u4e0b\u8fd0\u52a8\u795e\u7ecf\u5143\u5408\u5e76\u53d7\u7d2f\u3002&nbsp;<\/p>\n\n\n\n<p>\u6b64\u5916\uff0c\u7531\u4e8e\u810a\u9ad3\u6027\u808c\u840e\u7f29\u75c7\uff08ALS\uff09\u548c\u810a\u9ad3\u6027\u808c\u840e\u7f29\u75c7\uff08SMA\uff09\u5bf9\u8fd0\u52a8\u795e\u7ecf\u5143\u6709\u5171\u540c\u7684\u5f71\u54cd\uff0c\u56e0\u6b64\u5c06\u5b83\u4eec\u533a\u5206\u5f00\u6765\u81f3\u5173\u91cd\u8981\uff1b\u4f46\u4e0e ALS \u4e0d\u540c\u7684\u662f\uff0cSMA \u4e3b\u8981\u5f71\u54cd\u4e0b\u8fd0\u52a8\u795e\u7ecf\u5143\u3002\u5c06 ALS \u4e0e\u8fd9\u4e9b\u75be\u75c5\u533a\u5206\u5f00\u6765\u7684\u80fd\u529b\u5bf9\u4e8e\u51c6\u786e\u8bca\u65ad\u548c\u5b9a\u5236\u6cbb\u7597\u7b56\u7565\u81f3\u5173\u91cd\u8981\u3002<\/p>\n\n\n\n<h2 id=\"h-treatment-and-management\">\u6cbb\u7597\u548c\u7ba1\u7406<\/h2>\n\n\n\n<p>ALS \u7684\u6cbb\u7597\u548c\u7ba1\u7406\u5305\u62ec\u591a\u65b9\u9762\u7684\u65b9\u6cd5\u3002\u73b0\u6709\u7684\u6cbb\u7597\u65b9\u6848\u65e8\u5728\u51cf\u8f7b ALS \u60a3\u8005\u7684\u75c7\u72b6\u3001\u5ef6\u7f13\u75be\u75c5\u8fdb\u5c55\u548c\u63d0\u9ad8\u751f\u6d3b\u8d28\u91cf\u3002&nbsp;<\/p>\n\n\n\n<h3 id=\"h-available-treatment-options\">\u73b0\u6709\u6cbb\u7597\u65b9\u6848<\/h3>\n\n\n\n<ul>\n<li>\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u7684\u6cbb\u7597\u91cd\u70b9\u662f\u6d88\u9664\u75c7\u72b6\u3001\u63d0\u9ad8\u751f\u6d3b\u8d28\u91cf\u548c\u5ef6\u7f13\u75c5\u60c5\u53d1\u5c55\u3002<\/li>\n\n\n\n<li>\u5229\u9c81\u5511\u548c\u4f9d\u8fbe\u62c9\u5949\u7b49\u836f\u7269\u5df2\u88ab\u6279\u51c6\u7528\u4e8e\u5ef6\u957f\u751f\u5b58\u671f\u548c\u5ef6\u7f13\u75c5\u60c5\u6076\u5316\u3002<\/li>\n\n\n\n<li>\u5df4\u6c2f\u82ac\u548c\u5176\u4ed6\u836f\u7269\u53ef\u4ee5\u5e2e\u52a9\u63a7\u5236\u808c\u8089\u75c9\u631b\uff0c\u800c\u6297\u80c6\u78b1\u80fd\u836f\u7b49\u836f\u7269\u5219\u53ef\u4ee5\u89e3\u51b3\u553e\u6db2\u5206\u6ccc\u8fc7\u591a\u7684\u95ee\u9898\u3002<\/li>\n\n\n\n<li>\u5f53\u808c\u8089\u529f\u80fd\u8870\u9000\u65f6\uff0c\u65e0\u521b\u547c\u5438\u673a\u548c\u5582\u98df\u7ba1\u7b49\u8f85\u52a9\u8bbe\u5907\u53ef\u5e2e\u52a9\u547c\u5438\u548c\u8865\u5145\u8425\u517b\u3002<\/li>\n<\/ul>\n\n\n\n<h3 id=\"h-managing-symptoms-and-quality-of-life\">\u63a7\u5236\u75c7\u72b6\u548c\u63d0\u9ad8\u751f\u6d3b\u8d28\u91cf<\/h3>\n\n\n\n<ul>\n<li>\u7269\u7406\u548c\u804c\u4e1a\u7597\u6cd5\u6709\u52a9\u4e8e\u4fdd\u6301\u808c\u8089\u529b\u91cf\u3001\u6d3b\u52a8\u80fd\u529b\u548c\u72ec\u7acb\u6027\u3002<\/li>\n\n\n\n<li>\u8a00\u8bed\u6cbb\u7597\u6709\u52a9\u4e8e\u89e3\u51b3\u4ea4\u6d41\u548c\u541e\u54bd\u56f0\u96be\u3002<\/li>\n\n\n\n<li>\u8425\u517b\u54a8\u8be2\u3001\u5fc3\u7406\u54a8\u8be2\u548c\u652f\u6301\u5c0f\u7ec4\u7b49\u652f\u6301\u6027\u7597\u6cd5\u6709\u52a9\u4e8e\u89e3\u51b3\u60c5\u611f\u548c\u5b9e\u9645\u95ee\u9898\u3002<\/li>\n\n\n\n<li>\u59d1\u606f\u5173\u6000\u548c\u4e34\u7ec8\u5173\u6000\u670d\u52a1\u53ef\u63d0\u9ad8\u665a\u671f\u60a3\u8005\u7684\u8212\u9002\u5ea6\u548c\u751f\u6d3b\u8d28\u91cf\u3002<\/li>\n<\/ul>\n\n\n\n<h3 id=\"h-ongoing-research-and-future-therapies\">\u6b63\u5728\u8fdb\u884c\u7684\u7814\u7a76\u548c\u672a\u6765\u7597\u6cd5<\/h3>\n\n\n\n<ul>\n<li>\u7814\u7a76\u4eba\u5458\u4ecd\u5728\u7ee7\u7eed\u7814\u7a76 ALS \u7684\u6839\u672c\u539f\u56e0\u548c\u6f5c\u5728\u6cbb\u7597\u76ee\u6807\u3002<\/li>\n\n\n\n<li>\u57fa\u56e0\u7597\u6cd5\u65e8\u5728\u7ea0\u6b63\u5bfc\u81f4\u5bb6\u65cf\u6027\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u7684\u57fa\u56e0\u7a81\u53d8\u3002<\/li>\n\n\n\n<li><a href=\"https:\/\/mindthegraph.com\/blog\/stem-cell-research-pros-and-cons\/\">\u5e72\u7ec6\u80de\u7814\u7a76<\/a> \u63a2\u7d22\u5229\u7528\u5e72\u7ec6\u80de\u66ff\u4ee3\u53d7\u635f\u7684\u8fd0\u52a8\u795e\u7ecf\u5143\u3002<\/li>\n\n\n\n<li>\u521b\u65b0\u65b9\u6cd5\u5305\u62ec\u9488\u5bf9\u53d7 ALS \u5f71\u54cd\u7684\u795e\u7ecf\u5143\u4e2d\u7684\u5f02\u5e38\u86cb\u767d\u8d28\u79ef\u7d2f\u548c\u708e\u75c7\u3002<\/li>\n\n\n\n<li>\u5f00\u53d1\u751f\u7269\u6807\u8bb0\u7269\u6709\u52a9\u4e8e\u65e9\u671f\u8bca\u65ad\u548c\u8ddf\u8e2a\u75be\u75c5\u8fdb\u5c55\u3002<\/li>\n\n\n\n<li>\u4eba\u4eec\u4ecd\u5728\u79ef\u6781\u5bfb\u627e\u65b0\u7684\u6cbb\u7597\u836f\u7269\u548c\u7b56\u7565\uff0c\u4ee5\u63d0\u4f9b\u66f4\u6709\u6548\u7684 ALS \u6cbb\u7597\u65b9\u6cd5\u3002<\/li>\n<\/ul>\n\n\n\n<h2 id=\"h-impact-on-daily-life\">\u5bf9\u65e5\u5e38\u751f\u6d3b\u7684\u5f71\u54cd<\/h2>\n\n\n\n<p>\u7531\u4e8e\u808c\u8089\u529f\u80fd\u548c\u8fd0\u52a8\u63a7\u5236\u80fd\u529b\u9010\u6e10\u4e27\u5931\uff0c\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u4e25\u91cd\u6539\u53d8\u4e86\u60a3\u8005\u7684\u65e5\u5e38\u751f\u6d3b\u3002\u968f\u7740\u75c5\u60c5\u7684\u53d1\u5c55\uff0c\u8d70\u8def\u3001\u62ff\u4e1c\u897f\u751a\u81f3\u8bf4\u8bdd\u7b49\u7b80\u5355\u52a8\u4f5c\u90fd\u4f1a\u53d8\u5f97\u8d8a\u6765\u8d8a\u56f0\u96be\u3002\u66fe\u7ecf\u88ab\u89c6\u4e3a\u7406\u6240\u5f53\u7136\u7684\u4efb\u52a1\u9700\u8981\u4ed8\u51fa\u5de8\u5927\u7684\u52aa\u529b\uff0c\u751a\u81f3\u53ef\u80fd\u65e0\u6cd5\u72ec\u7acb\u5b8c\u6210\u3002\u968f\u7740\u8fd0\u52a8\u548c\u4ea4\u6d41\u80fd\u529b\u7684\u4e0b\u964d\uff0c\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\u60a3\u8005\u5f80\u5f80\u9700\u8981\u8f85\u52a9\u8bbe\u5907\u548c\u9002\u5e94\u6280\u672f\u6765\u7ef4\u6301\u4e00\u5b9a\u7684\u529f\u80fd\u548c\u53c2\u4e0e\u65e5\u5e38\u6d3b\u52a8\u3002<\/p>\n\n\n\n<h2 id=\"h-support-for-patients-and-families\">\u4e3a\u60a3\u8005\u548c\u5bb6\u5c5e\u63d0\u4f9b\u652f\u6301<\/h2>\n\n\n\n<p>ALS \u60a3\u8005\u53ca\u5176\u5bb6\u4eba\u90fd\u9700\u8981\u4e00\u4e2a\u5f3a\u5927\u7684\u652f\u6301\u7f51\u7edc\u3002\u60a3\u8005\u9700\u8981\u8eab\u4f53\u3001\u60c5\u611f\u548c\u5fc3\u7406\u4e0a\u7684\u652f\u6301\uff0c\u4ee5\u5e94\u5bf9\u75be\u75c5\u5e26\u6765\u7684\u6311\u6218\u3002\u8fd9\u5305\u62ec\u534f\u52a9\u60a3\u8005\u8fdb\u884c\u65e5\u5e38\u6d3b\u52a8\u3001\u7ba1\u7406\u533b\u7597\u9700\u6c42\u548c\u89e3\u51b3\u60c5\u7eea\u95ee\u9898\u3002&nbsp;<\/p>\n\n\n\n<p>\u5728\u5bfb\u6c42 \"\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\uff1f\"\u8fd9\u4e00\u95ee\u9898\u7684\u7b54\u6848\u65f6\uff0c\u5bb6\u5ead\u548c\u62a4\u7406\u4eba\u5458\u5728\u63d0\u4f9b\u8fd9\u79cd\u652f\u6301\u65b9\u9762\u53d1\u6325\u7740\u81f3\u5173\u91cd\u8981\u7684\u4f5c\u7528\u3002\u4ed6\u4eec\u4e5f\u9700\u8981\u8d44\u6e90\u6765\u5e94\u5bf9\u7167\u987e\u8005\u7684\u60c5\u611f\u538b\u529b\u548c\u5b9e\u9645\u9700\u6c42\u3002\u652f\u6301\u5c0f\u7ec4\u3001\u54a8\u8be2\u670d\u52a1\u548c\u6559\u80b2\u8d44\u6e90\u53ef\u4ee5\u5728\u5e94\u5bf9 ALS \u7684\u590d\u6742\u6027\u65b9\u9762\u63d0\u4f9b\u5b9d\u8d35\u7684\u5e2e\u52a9\u3002<\/p>\n\n\n\n<h2 id=\"h-stories-and-perspectives-from-individuals-with-als\">ALS \u60a3\u8005\u7684\u6545\u4e8b\u548c\u89c2\u70b9<\/h2>\n\n\n\n<p>ALS \u60a3\u8005\u7684\u4e2a\u4eba\u6545\u4e8b\u548c\u89c2\u70b9\u4e3a\u6211\u4eec\u63d0\u4f9b\u4e86\u9762\u5bf9\u8fd9\u79cd\u6e10\u8fdb\u6027\u75be\u75c5\u7684\u72ec\u7279\u89c1\u89e3\u3002\u8fd9\u4e9b\u6545\u4e8b\u5f70\u663e\u4e86\u9002\u5e94 ALS \u5e26\u6765\u7684\u53d8\u5316\u548c\u9650\u5236\u6240\u9700\u7684\u529b\u91cf\u3001\u52c7\u6c14\u548c\u97e7\u6027\u3002\u5b83\u4eec\u4e3a\u5206\u4eab\u7ecf\u9a8c\u3001\u6311\u6218\u548c\u5e94\u5bf9\u7b56\u7565\u63d0\u4f9b\u4e86\u4e00\u4e2a\u5e73\u53f0\u3002\u5206\u4eab\u8fd9\u4e9b\u6545\u4e8b\u53ef\u4ee5\u57f9\u517b ALS \u60a3\u8005\u7684\u7fa4\u4f53\u610f\u8bc6\uff0c\u6fc0\u53d1\u4ed6\u4eec\u7684\u5e0c\u671b\uff0c\u5e76\u63d0\u4f9b\u4e00\u79cd\u8054\u7cfb\u611f\uff0c\u4ece\u800c\u5e2e\u52a9\u4e2a\u4eba\u548c\u5bb6\u5ead\u5728\u6297\u4e89\u4e2d\u51cf\u5c11\u5b64\u72ec\u611f\u3002<\/p>\n\n\n\n<h2 id=\"h-join-our-fast-growing-community-to-revolutionize-scientific-communication\">\u52a0\u5165\u6211\u4eec\u5feb\u901f\u53d1\u5c55\u7684\u793e\u533a\uff0c\u9769\u65b0\u79d1\u5b66\u4ea4\u6d41\uff01<\/h2>\n\n\n\n<p>\u4e86\u89e3 <a href=\"https:\/\/mindthegraph.com\/\" target=\"_blank\" rel=\"noreferrer noopener\">Mind the Graph<\/a> Mind the Graph \u5e73\u53f0\u4e3a\u79d1\u5b66\u5bb6\u63d0\u4f9b\u4e86\u6709\u6548\u4ea4\u6d41\u7684\u7efc\u5408\u5de5\u5177\u5305\u3002\u901a\u8fc7\u65e0\u7f1d\u6574\u5408\u89c6\u89c9\u6548\u679c\u3001\u6570\u636e\u548c\u4fe1\u606f\uff0cMind the Graph \u7b80\u5316\u4e86\u590d\u6742\u7684\u79d1\u5b66\u6982\u5ff5\uff0c\u4f7f\u4e13\u5bb6\u548c\u5e7f\u5927\u53d7\u4f17\u90fd\u80fd\u7406\u89e3\u8fd9\u4e9b\u6982\u5ff5\u3002&nbsp;<\/p>\n\n\n\n<div style=\"height:21px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><a href=\"https:\/\/mindthegraph.com\/\"><img decoding=\"async\" loading=\"lazy\" width=\"594\" height=\"463\" src=\"https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2022\/11\/scientifically-accurate-posters.png\" alt=\"\" class=\"wp-image-25484\" srcset=\"https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2022\/11\/scientifically-accurate-posters.png 594w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2022\/11\/scientifically-accurate-posters-300x234.png 300w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2022\/11\/scientifically-accurate-posters-15x12.png 15w, https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2022\/11\/scientifically-accurate-posters-100x78.png 100w\" sizes=\"(max-width: 594px) 100vw, 594px\" \/><\/a><\/figure><\/div>\n\n\n<div style=\"height:21px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"is-layout-flex wp-block-buttons\">\n<div class=\"wp-block-button aligncenter\"><a class=\"wp-block-button__link has-background wp-element-button\" href=\"https:\/\/mindthegraph.com\/\" style=\"border-radius:50px;background-color:#dc1866\" target=\"_blank\" rel=\"noreferrer noopener\">\u7528Mind the Graph\u5f00\u59cb\u521b\u4f5c<\/a><\/div>\n<\/div>\n\n\n\n<div style=\"height:44px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>","protected":false},"excerpt":{"rendered":"<p>\u5bf9\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u4fa7\u7d22\u786c\u5316\u75c7\u611f\u5230\u597d\u5947\uff1f\u6df1\u5165\u4e86\u89e3 ALS \u7684\u75c5\u56e0\u3001\u75c7\u72b6\u548c\u6cbb\u7597\u65b9\u6cd5\u3002<\/p>","protected":false},"author":28,"featured_media":28941,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[959,28],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v19.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>What is Amyotrophic Lateral Sclerosis and Its Effects? - Mind the Graph Blog<\/title>\n<meta name=\"description\" content=\"Curious about what Amyotrophic Lateral Sclerosis is? Dive into this ALS guide for insights on causes, symptoms, and treatments.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/mindthegraph.com\/blog\/zh\/\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\uff1f\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"What is Amyotrophic Lateral Sclerosis and Its Effects?\" \/>\n<meta property=\"og:description\" content=\"Curious about what Amyotrophic Lateral Sclerosis is? Dive into this ALS guide for insights on causes, symptoms, and treatments.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/mindthegraph.com\/blog\/zh\/\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\uff1f\/\" \/>\n<meta property=\"og:site_name\" content=\"Mind the Graph Blog\" \/>\n<meta property=\"article:published_time\" content=\"2023-08-09T11:23:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-08-10T15:52:17+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1123\" \/>\n\t<meta property=\"og:image:height\" content=\"612\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Jessica Abbadia\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:title\" content=\"What is Amyotrophic Lateral Sclerosis and Its Effects?\" \/>\n<meta name=\"twitter:description\" content=\"Curious about what Amyotrophic Lateral Sclerosis is? Dive into this ALS guide for insights on causes, symptoms, and treatments.\" \/>\n<meta name=\"twitter:image\" content=\"https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog.jpg\" \/>\n<meta name=\"twitter:label1\" content=\"\u4f5c\u8005\" \/>\n\t<meta name=\"twitter:data1\" content=\"Jessica Abbadia\" \/>\n\t<meta name=\"twitter:label2\" content=\"\u9884\u8ba1\u9605\u8bfb\u65f6\u95f4\" \/>\n\t<meta name=\"twitter:data2\" content=\"10\u5206\" \/>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"What is Amyotrophic Lateral Sclerosis and Its Effects? - Mind the Graph Blog","description":"Curious about what Amyotrophic Lateral Sclerosis is? Dive into this ALS guide for insights on causes, symptoms, and treatments.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/mindthegraph.com\/blog\/zh\/\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\uff1f\/","og_locale":"zh_CN","og_type":"article","og_title":"What is Amyotrophic Lateral Sclerosis and Its Effects?","og_description":"Curious about what Amyotrophic Lateral Sclerosis is? Dive into this ALS guide for insights on causes, symptoms, and treatments.","og_url":"https:\/\/mindthegraph.com\/blog\/zh\/\u4ec0\u4e48\u662f\u808c\u840e\u7f29\u6027\u810a\u9ad3\u4fa7\u7d22\u786c\u5316\u75c7\uff1f\/","og_site_name":"Mind the Graph Blog","article_published_time":"2023-08-09T11:23:00+00:00","article_modified_time":"2023-08-10T15:52:17+00:00","og_image":[{"width":1123,"height":612,"url":"https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog.jpg","type":"image\/jpeg"}],"author":"Jessica Abbadia","twitter_card":"summary_large_image","twitter_title":"What is Amyotrophic Lateral Sclerosis and Its Effects?","twitter_description":"Curious about what Amyotrophic Lateral Sclerosis is? Dive into this ALS guide for insights on causes, symptoms, and treatments.","twitter_image":"https:\/\/mindthegraph.com\/blog\/wp-content\/uploads\/2023\/08\/what-is-amyotrophic-lateral-sclerosis-blog.jpg","twitter_misc":{"\u4f5c\u8005":"Jessica Abbadia","\u9884\u8ba1\u9605\u8bfb\u65f6\u95f4":"10\u5206"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/mindthegraph.com\/blog\/what-is-amyotrophic-lateral-sclerosis\/","url":"https:\/\/mindthegraph.com\/blog\/what-is-amyotrophic-lateral-sclerosis\/","name":"What is Amyotrophic Lateral Sclerosis and Its Effects? - Mind the Graph Blog","isPartOf":{"@id":"https:\/\/mindthegraph.com\/blog\/#website"},"datePublished":"2023-08-09T11:23:00+00:00","dateModified":"2023-08-10T15:52:17+00:00","author":{"@id":"https:\/\/mindthegraph.com\/blog\/#\/schema\/person\/96ecc2d785106e951f7773dc7c96d699"},"description":"Curious about what Amyotrophic Lateral Sclerosis is? Dive into this ALS guide for insights on causes, symptoms, and treatments.","breadcrumb":{"@id":"https:\/\/mindthegraph.com\/blog\/what-is-amyotrophic-lateral-sclerosis\/#breadcrumb"},"inLanguage":"zh-CN","potentialAction":[{"@type":"ReadAction","target":["https:\/\/mindthegraph.com\/blog\/what-is-amyotrophic-lateral-sclerosis\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/mindthegraph.com\/blog\/what-is-amyotrophic-lateral-sclerosis\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/mindthegraph.com\/blog\/"},{"@type":"ListItem","position":2,"name":"What is Amyotrophic Lateral Sclerosis and Its Effects?"}]},{"@type":"WebSite","@id":"https:\/\/mindthegraph.com\/blog\/#website","url":"https:\/\/mindthegraph.com\/blog\/","name":"Mind the Graph Blog","description":"Your science can be beautiful!","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/mindthegraph.com\/blog\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"zh-CN"},{"@type":"Person","@id":"https:\/\/mindthegraph.com\/blog\/#\/schema\/person\/96ecc2d785106e951f7773dc7c96d699","name":"Jessica Abbadia","image":{"@type":"ImageObject","inLanguage":"zh-CN","@id":"https:\/\/mindthegraph.com\/blog\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/f477bd20199beb376b04b2fda9a2cec5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/f477bd20199beb376b04b2fda9a2cec5?s=96&d=mm&r=g","caption":"Jessica Abbadia"},"description":"Jessica Abbadia is a lawyer that has been working in Digital Marketing since 2020, improving organic performance for apps and websites in various regions through ASO and SEO. Currently developing scientific and intellectual knowledge for the community's benefit. Jessica is an animal rights activist who enjoys reading and drinking strong coffee.","sameAs":["https:\/\/www.linkedin.com\/in\/jessica-abbadia-9b834a13b\/"],"url":"https:\/\/mindthegraph.com\/blog\/zh\/author\/jessica\/"}]}},"_links":{"self":[{"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/posts\/28939"}],"collection":[{"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/users\/28"}],"replies":[{"embeddable":true,"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/comments?post=28939"}],"version-history":[{"count":6,"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/posts\/28939\/revisions"}],"predecessor-version":[{"id":29028,"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/posts\/28939\/revisions\/29028"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/media\/28941"}],"wp:attachment":[{"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/media?parent=28939"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/categories?post=28939"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/mindthegraph.com\/blog\/zh\/wp-json\/wp\/v2\/tags?post=28939"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}